JAR of Hope Golf Outing Benefit for Duchenne Muscular Dystrophy

Source: JARofHope.org

JAR of Hope’s third Annual Invitational Golf Outing takes place at Trump National Colts Neck course on Wednesday, Sept. 13. There’s substantial prize money for the winning team and for individual golfers. And the unique 50/50 Golf Ball Drop means someone will walk away with a much fatter wallet than when they walked in.

JAR of Hope raises funds to research a cure for kids with an extremely rare, fatal childhood disease — Duchenne muscular dystrophy, which is so rare that only 17,000 kids in America (mostly boys) have it. These kids are in wheelchairs by their early-teens. On ventilators by the mid-teens. And in their graves by the early 20s…after asphyxiating.

“Last year’s Golf Outing was a very special event, for both the golfers and these kids,” says Jim Raffone, Founder/CEO of JAR of Hope. “We raised over $200,000 to fund research on a cure for Duchenne md. And we’re delighted to have a great co-host in Alliance Orthopedics back again this year.”

The winning team will walk away with $13,000, and individual awards (longest drive, etc.) go up to $2,500. For the special 50/50 Golf Ball Drop, a helicopter will drop golf balls on the 19th Hole, and the one closest to – or in – the hole, will win half the pot. The pot is already over $27,000 – and still rising. And you don’t even have to attend the event to participate.

Jim and Karen Raffone started JAR of Hope 10 years ago, after their four-year-old son James Anthony (“Jamesy”), was diagnosed with Duchenne. He’s now in a wheelchair. Their reason was simple — to raise funds to research a cure for this disease that takes children away.

“We’re honored to continue our partnership with JAR of Hope to host a great charitable event,” says Nick Bufano, CEO of Alliance Orthopedics. “And we’re committed to treating Jamesy Raffone and other children with DMD, and to provide their families with the resources they need.”

Registration and lunch start at 11 a.m. on Sept. 13, and the day ends with a dinner/awards ceremony. There are nine corporate or personal sponsorships available. Awards for individual golfers (longest drive, etc.) range up to $2,500. And the 50/50 Golf Ball Drop is a unique addition.

“It’ll be a great day for golfers and for attendees,” Jim Raffone says. “And we’re hoping community support will turn it into a day of great joy for families confronting Duchenne muscular dystrophy.”

Pre-registration for all activities is at JarOfHope.org/invitational. Please feel free to call Steve Winston at (561) 450-8181 or email steve @jar of hope . org.

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