Moebius Syndrome Groups Unite For International Craniofacial Awareness Effort


The Children’s Craniofacial Association; Many Faces Of Moebius Syndrome; Face Equality International; and Moebius Syndrome Foundation have UNITED in celebrating the 11th Annual Moebius Syndrome Awareness Day which will be celebrated worldwide on January 24, 2022.

This event will occur in real-time online as people around the world hold a wide variety of special events in multiple locations to recognize the UNITY of understanding and hope that has brought us all together. This is held annually on the birthday of Paul Julius Moebius (who first described this facial paralysis condition in medical literature), because his efforts have also united us from isolated anonymity into a network of understanding and support.

Each organization has released a statement:

“Unity is necessary because to meet the biggest challenges in life, we must realize that you or I are not enough to handle it all alone. But it is also beautiful. Unity means that we come together, as a critical mass, to be enough. We have to connect; e have to work alongside each other. At the Children’s Craniofacial Association, we find each other’s unique abilities and brilliance, no matter how different they are from our own.”

“Since our inception, the Many Faces of Moebius Syndrome (MFOMS) has moved forward with passionate diligence to unite our global community with other organizations who serve it through our websites, social media pages, and in-person events. Only in unity can we satisfy all the needs of our community and build a better tomorrow for those of us living with Moebius syndrome and their families.”

“Face Equality International has always been thrilled and honored to collaborate with MFOMS. Seeing the incredible, dedicated community that has been built to support and empower each other has been a privilege to behold. Awareness days are a vital part of advocating for respect, awareness and understanding. But all advocates know that this has to go beyond one single day or week in the year. We believe in bringing the facial difference community together to champion respect and eradicate discrimination.”

“For nearly thirty years, the Moebius Syndrome Foundation has been unifying the Moebius syndrome community. Whether we’re bringing people together online or in-person, we always strive to bring our small community together. We support MFOMS and all our partner Moebius organization groups around the world
as they bring unity, spread awareness and support, and celebrate those effected by Moebius syndrome.”

Please take time to learn more about Moebius syndrome and face equality. We are far more than a medical description: we are public servants, doctors, nurses, educators, ministers, dedicated employees of all kinds, parents, children, and others allied in support for those with Moebius syndrome and other visible differences.

Please wear purple — it reflects nobility, wisdom, power, spirituality. These organizations are UNITED in recognizing both the progress they have made as well as the hopes they embrace for the future.

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