Facial Paralysis Awareness: Many Faces Of Moebius Syndrome.org · Bells Palsy/Covid Vaccine · Other Conditions · Donate
On Sunday, January 24, 2021, please join the globa Moebius Syndrome community to celebrate Moebius Syndrome Awareness Day (the birthdate of Dr. Paul Julius Moebius, who first diagnosed the disorder in 1888).
Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius Syndrome are born with complete facial paralysis and can’t close their eyes or show facial expressions.
Limb and chest wall abnormalities often occur with the syndrome. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders and weak upper body strength may also be present. It is estimated that there are only between 10,000 to 25,000 cases of Moebius syndrome worldwide.
In past years, Moebius Syndrome Awareness Day has been a resounding success and saw participation from every continent on the planet: the main focus is to create awareness. Many Faces Of Moebius Syndrome (MSAD) events have taken place around the globe in homes, schools, churches, workplaces, auditoriums, and outdoors.
Family, and the importance thereof in the lives of individuals who have Moebius syndrome is the focus of this year’s Awareness Day. “It is a tribute to the many families around the world who are often the unsung heroes of our lives” says Tim Smith, president of the Many Faces of Moebius Syndrome, who himself has the condition.
Adds Vicki McCarrell, co-founder of the Moebius Syndrome Foundation: “There is no substitute for a loving, supportive family whether that family is biological, or our worldwide Moebius Family. Knowing someone is there to support and fight for you when the going gets tough makes living with Moebius Syndrome a little easier.”
We encourage you to proudly wear purple and educate yourself and others about Moebius Syndrome — we appreciate your support!