Newark 13-year-old with Rare Disease; Camden Hospital Mistaken Kidney Transplant

Sources: RLS Media; News12 New Jersey

For this holiday season, we are asking that you open your hearts to help a family that has helped so many families and the community.

The family of a Newark Ironbound girl hospitalized for Arteriovenous malformation (AVM) seeks the public’s support.

Emilia Santos is a fantastic student at Science Park High School in Newark. In a satement, her family said she is thirteen years old and was born with the rare disease AVM, which causes bleeding into her brain and spinal cord. Family members say Emilia is currently in the hospital due to her condition and needs your support.

According to officials at the Center for Disease Control, Arteriovenous malformation (AVM) is usually present at birth. The arteries and veins in an AVM can rupture, causing bleeding into the brain or spinal cord.

CDC officials say symptoms can include headaches and seizures. Surgery is the most common treatment for brain AVMs. In some cases, a catheter or radiation may be used to close off vessels. Medication may be used to treat headaches and seizures.

Emilia’s mom Dina, has been a pillar in the community for years. Her family’s involvement with the Girl Scouts is just one example of their efforts in bettering the world.

Any donation, regardless of size, will make a difference to her recovery. Click her to Help Emilia.


A Camden County hospital is apologizing for performing a kidney transplant on the wrong patient.

Officials with Virtua Our Lady of Lourdes Hospital in Camden say that a kidney meant for one patient was mistakenly transplanted into another patient with the same name who was farther down the priority list.

Virtua Health says the Nov. 18 operation on a 51-year-old patient was successful, but officials then discovered that the patient was transplanted out of priority order because “unusually, the individual who should have received the organ has the same name and is of similar age.”

Virtua Health says the error was reported to state health officials and the Organ Procurement and Transplantation Network, and the patient who should have received the kidney also underwent a successful transplant on Nov. 24.

“Mistakes of this magnitude are rare, and despite the unusual circumstances of similar patient identities, additional verification would have prevented this error,” Virtua Health executive vice president Reginald Blaber said in a statement. Officials say steps have been taken to prevent a recurrence.

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