National Epilepsy Awareness Month (#NEAM): Epilepsy Foundation (New Jersey Chapter) · The Epilepsy Network · Epilepsy Services Of New Jersey · Seizure First Aid Training · Donate
The Epilepsy Foundation New Jersey provides programs and services that support people and families impacted by epilepsy. With the strength of a national organization and network of epilepsy experts, EFNJ provides national scope and local impact.
Everyone is aware of the dangers of fire and sudden infant death syndrome (SIDS). Yet each year, sudden unexpected death in epilepsy (SUDEP) kills more Americans than either of these.
Sadly, many people living with epilepsy have never heard of SUDEP. While research shows people with epilepsy say they want more information on SUDEP, many medical professionals rarely talk about it. The SUDEP program was formed in 2013 to drive awareness and education among those living with epilepsy, their caregivers, physicians, medical examiners and the public. We believe that by building awareness and working together, we can prevent SUDEP.
Sudden unexpected death in epilepsy (SUDEP) is said to occur when a person with epilepsy dies unexpectedly and was previously in their usual state of health. The death is not known to be related to an accident or seizure emergency such as status epilepticus. When an autopsy is done, no other of cause of death can be found.
Each year, more than 1 out of 1,000 people with epilepsy die from SUDEP. However, it occurs more frequently in people with epilepsy whose seizures are poorly controlled. The Epilepsy Foundation understands and places a priority on the importance of educating and supporting everyone affected by epilepsy, including those who have lost.
The Epilepsy Foundation’s SUDEP program works to prevent SUDEP and support people bereaved by SUDEP and other epilepsy-related deaths. From ground breaking research to SUDEP support, local educational programs and a 24/7 Helpline, Epilepsy Foundation New Jersey is here to serve you.