Featured Video: Rare Disease Awareness 2021


Rare Disease Awareness: #RareDiseaseDay.org Feb. 28 · National Organization For Rare Disorders: #ShowYourStripes · Disease Database · Donate

In the U.S., a disease that affects fewer than 200,000 people is classified as a rare disease. There are roughly 7,000 such diseases, and more than 90% of them do not have Food and Drug Administration (FDA)-approved treatment. Since the creation of Rare Disease Day in 2008 (the last day of every February), it has been a time for the rare disease community to come together, find support, and shine a light on rare diseases worldwide.

The zebra is the official symbol of rare diseases in the United States due to the black and white stripes which are central to their uniqueness. This year, Rare Disease Day will look a little different here in the United States as we connect virtually instead of in person due to the ongoing COVID-19 pandemic.

In the spirit of raising the profile of the rare disease community at large and celebrating Rare Disease Day this year, the National Organization For Rare Disorders (NORD) will promote specific ways that individuals, organizations and groups can show their stripes. Joining the Show Your Stripes movement and wearing stripes on Rare Disease Day, taking a photograph and posting it with a message of support on social media, using the hashtags #ShowYourStripes and #RareDiseaseDay.

There are many ways you can still Show Your Stripes® for rare diseases and make February 28, 2021 impactful and celebratory. This concept originated in 2019 when the Empire State Building in New York City was striped in Rare Disease Day colors thanks to the work of RocketPharma, a member of NORD’s corporate council. The image of such a famous landmark shining bright for Rare Disease Day was an inspiration for many.

Click to discover other ways to .

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